Alfredo Ormazabal

Title: Incorporating patient-generated health data into clinical records

Supervision Team: Lucy Hederman, TCD/ Damon Berry, TU Dublin

Description: Patient-generated health data (PGHD), that is data originating from patients or their carers, not from clinicians, is a growing feature of chronic disease care. PGHD has the potential to impact health care delivery and clinical research. This PhD will focus on informatics aspects of these challenges, exploring how to allow for the incorporation of PGHD in EHRs and clinical systems, taking account of data interoperability issues, ensuring standardisation of the non-clinical data, and the appropriate representation of metadata about quality, governance, provenance. The research will be grounded in the Irish national health system and will seek to align with the national EHR project.