Abdullahi Abubakar Kawu

Title: Exchanging personal health data with electronic health records: A standardized information model for patient-generated health data

Supervision Team: Dympna O’Sullivan, TU Dublin / Lucy Hederman, TCD

Description: As healthcare technologies evolve, the management of health data is no longer only clinician-governed but also patient-controlled. Engagement with consumer health IT has been augmented by Internet of Things-based sensing and mobile health apps. Until recently, Electronic Health Records were seen as the main vehicle to drive healthcare systems forward, however a vital role is increasingly played by patients in controlling their own health information and self-managing their diseases. The objective of this research is the development of a novel middleware information model to facilitate better interoperability and exchange of patient generated health data between patients and providers. Key research challenges include the development of a conceptual architecture of an interoperable solution, semantic representation to enable data to be mapped to standardized biomedical vocabularies such as SNOMED-CT, syntactic representation to conform to healthcare standards such as HL7 FHIR and privacy and security requirements for transferring and storing personal health data.